I often think about who I was before I had a child with a congenital heart defect, you wouldn't have wanted to know that person. Twenty two plus-years-ago I was a self absorbed, self destructive person who didn't give a rip about anyone besides herself. After I had Alexia, I made a complete turn around, I still had some selfish moments but they didn't last long. I started volunteering for the Make A Wish Foundation of Sacramento, www.makeawish-sacto.org, and eventually became Program Director. During one of Alexia's scariest hospitalizations, about 10 years ago, I met my now husband Carl who was the Charge Nurse in the PICU where Alexia spent 6 + weeks, which resulted in our wonderful, 6-year-old son, Aden. I am fortunate to be able to stay home with my family and volunteer for what I enjoy most,The Pediatric Heart Surgery Program at Sutter Memorial Hospital. I am also the Chairperson for the Family Advisory Council and offer alot of help at Aden's school Camellia Waldorf, Class Parent. I am now working on our upcoming Pediatric Heart Surgery Parent Evening Symposium, geared for September 28th. This is an educational event, with dinner, dessert etc. This year we will talk about many things including what can be done via heart catheterization in lieu of open heart surgery. We will have an entire team of physicians, nurses and child life specialists and the role they play in your child's care before during and after open heart surgery. I thrive on these types of things, of helping others...what a difference from pre-twenty plus-years-ago.
Saturday, July 7, 2007
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2 comments:
Hi Valerie,
Glad to see you joined the blogosphere. I'll add your page to my blogroll. I didn't know you loved to cook! I'll be checking back for more recipes!
Andrea
Hi Valerie-
Maybe we wouldn't have liked the girl 22+ years ago but we know we sure love and appreciate her now; even though we have only met you thus far via the Internet & through the Carepages.
We will continue to keep Alexia and your family in our hearts & prayers.
Love & Blessings sent from the Middle East,
Ron & Kathy
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